حساب های نوشته شده زندگی با صرع: یک تجزیه و تحلیل موضوعی
|کد مقاله||سال انتشار||تعداد صفحات مقاله انگلیسی||ترجمه فارسی|
|120020||2017||8 صفحه PDF||سفارش دهید|
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Publisher : Elsevier - Science Direct (الزویر - ساینس دایرکت)
Journal : Epilepsy & Behavior, Volume 72, July 2017, Pages 63-70
This study examines the subjective experience of living with epilepsy by thematically analyzing participants' written accounts of their condition. Writing is seen as an individual act allowing for private exploration, reflection and expression of thoughts and feelings. Participants (nÂ =Â 20) were recruited from a United Kingdom hospital and from membership-led organizations for individuals living with seizures. Participants were asked to produce four pieces of writing: 1) about their thoughts and feelings about their condition; 2) a letter to their condition; 3) a letter to their younger self; and 4) about a personal value. All writings were analyzed thematically using a theory- and data-driven approach. Five main-themes and 22 sub-themes emerged from the data. Theme 1: âseizure onsetâ demonstrated that the development of seizures and subsequent diagnosis was an important event that could change an individuals' identity. Theme 2: âseizure symptomsâ revealed participants externalized their seizures as an intrusive agent with a constant presence in their lives. Theme 3: âtreatment and outcomeâ reflected medication as an essential means to controlling seizures with subsequent side effects being perceived as a compromise. Theme 4: âliving with epilepsyâ explored the consequences of the condition including restrictions and stigma. Theme 5: âdisplays of copingâ demonstrated that, for the most part, participants were keen to present themselves as living well with epilepsy. The results add to the growing research applying qualitative methodologies to investigate the phenomenology of epilepsy. Qualitative research can improve our understanding and awareness of the condition, as well as inform clinical practice.