دانلود مقاله ISI انگلیسی شماره 73822
عنوان فارسی مقاله

مقایسه اثرات مالی و اشتغال خانواده بر سندرم ایکس شکننده، اختلالات طیف اوتیسم، ناتوانی ذهنی

کد مقاله سال انتشار مقاله انگلیسی ترجمه فارسی تعداد کلمات
73822 2014 10 صفحه PDF سفارش دهید محاسبه نشده
خرید مقاله
پس از پرداخت، فوراً می توانید مقاله را دانلود فرمایید.
عنوان انگلیسی
A comparison of family financial and employment impacts of fragile X syndrome, autism spectrum disorders, and intellectual disability
منبع

Publisher : Elsevier - Science Direct (الزویر - ساینس دایرکت)

Journal : Research in Developmental Disabilities, Volume 35, Issue 7, July 2014, Pages 1518–1527

کلمات کلیدی
سندرم X شکننده؛ ناتوانی ذهنی؛ اختلالات طیف اوتیسم؛ اثرات پرستار
پیش نمایش مقاله
پیش نمایش مقاله مقایسه اثرات مالی و اشتغال خانواده بر سندرم ایکس شکننده، اختلالات طیف اوتیسم، ناتوانی ذهنی

چکیده انگلیسی

This study compares the family financial and employment impacts of having a child with fragile X syndrome (FXS), autism spectrum disorder (ASD), or intellectual disabilities (ID). Data from a 2011 national survey of families of children with FXS were matched with data from the National Survey of Children with Special Health Care Needs 2009–2010 to form four analytic groups: children with FXS (n = 189), children with special health care needs with ASD only (n = 185), ID only (n = 177), or both ASD and ID (n = 178). Comparable percentages of parents of children with FXS (60%) and parents of children with both ASD and ID (52%) reported that their families experienced a financial burden as a result of the condition, both of which were higher than the percentages of parents of children with ASD only (39%) or ID only (29%). Comparable percentages of parents of children with FXS (40%) and parents of children with both ASD and ID (46%) reported quitting employment because of the condition, both of which were higher than the percentages of parents of children with ID only (25%) or ASD only (25%). In multivariate analyses controlling for co-occurring conditions and functional difficulties and stratified by age, adjusted odds ratios for the FXS group aged 12–17 years were significantly elevated for financial burden (2.73, 95% CI 1.29–5.77), quitting employment (2.58, 95% CI 1.18–5.65) and reduced hours of work (4.34, 95% CI 2.08–9.06) relative to children with ASD only. Among children aged 5–11 years, the adjusted odds ratios for the FXS group were elevated but statistically insignificant for financial burden (1.63, 95% CI 0.85–3.14) and reducing hours of work (1.34, 95% CI 0.68–2.63) relative to children with ASD only. Regardless of condition, co-occurring anxiety or seizures, limits in thinking, reasoning, or learning ability, and more irritability were significantly associated with more caregiver financial and employment impacts. Proper management of anxiety or seizures and functional difficulties of children with FXS or other developmental disabilities may be important in alleviating adverse family caregiver impacts.

خرید مقاله
پس از پرداخت، فوراً می توانید مقاله را دانلود فرمایید.