کیفیت زندگی مرتبط با سلامتی برای بیماران مبتلا به لوکوآنسفالوپاتی

In this study, we have shown that patients with more severe clinical features experience a lower quality of life. Our study further highlights the importance of addressing both physical and psychosocial issues and discussing perception of quality of life with both parents and children. A future larger multicenter prospective study will be important to further define the burden of these diseases and identify modifiable factors.